Sunday, July 30, 2006

Futuro Compression Hose Review

A new compression hose option to consider! I tried Futuro Therapeutic Firm Support Knee High with Open Toe/Open Heel.

Here's what I love about them:

- If you prefer, you can buy them one at a time -- about $10-$12 each (check out drugstore.com). If, like me, you're wearing only one stocking, this flexibility in purchasing is helpful.
- Open toe and heel provides more shoe options. Backless sandals are possible again!
- Open toe and heel is slightly cooler (helpful when it's 110 in the shade).
- Seem more comfortable (less obvious pressure), yet just as effective at keeping swelling at bay.

Here are the downsides:

- Sizing is completely screwy. The measurements they show don't appear to be correct at all -- I advise just ordering in your typical size rather than going by their measurements. (Or look at their measurement ranges for some of their other products for better guidance.)
- Heavier and much more therapeutic looking. These won't pass as pantyhose!

I bought them at drugstore.com, but just found a better price (I'll be buying more) at Amazon -- two for $17. Click here for Futuro Therapeutic Support - Medium, Two Pack at Amazon.

Risks of DVT Recurrence Explored in New Research

As a patient approaching the (scary) decision point for whether to continue anticoagulant therapy, news of a new test that helps identify who's at highest risk for DVT recurrence is of interest to me:

Test Helps Identify Patients at Low Risk for Recurring Blood Clots (InfoZine)
Test to Assess Blood Clot Risk (BBC)

Curiously, the same study shows men may be at higher risk of recurrence than women -- and, more curiously, some media outlets chose to focus primarily on that angle:

Men at Higher Risk of Recurrent Blood Clots (Forbes)

Thankfully, the news provided another opportunity for high-profile patients to inform a broader audience:

Red Sox Manager Educates Others About Deep Vein Thrombosis (Boston Globe)

Tuesday, June 13, 2006

Tomatoes!

Interesting brief item today from The Scotsman (why are the British the only ones reporting these DVT tidbits?).

According to the report, eating six tomatoes or drinking four ounces of fresh tomato juice can prevent DVT.

http://news.scotsman.com/health.cfm?id=865842006

Because eating six tomatoes at a time might be inconvenient, the scientists at the Rowett Institute in Aberdeen, Scotland have isolated the compound in tomatoes that does the trick -- and developed a drink called CardioFlow that might soon be available on planes in Britain.

Thursday, May 18, 2006

New Study Confuses

A new study -- widely promoted, unlike most DVT news it seems -- suggests that the previously assumed link between air quality in planes and DVT may not exist.

This new study, from University of Leicester in the UK, concluded that airline cabin pressure does not increase likelihood of blood clotting (as measured by the presence of four markers in the blood that are early signs of clotting). Their theory is that lack of movement alone is the culprit in so-called "Economy Class Syndrome."

The Leicester study conflicts directly with a recent study from Leiden University in the Netherlands, which showed that clotting factors increased significantly more after eight hours of plane travel versus eight hours in a cinema seat. The Leiden study showed marked differences that appeared to be attributable only to the environment inside of planes.

Curiously, neither study mentioned a connection between air quality and dehydration -- which itself is a link in clotting risk.

On the plus side, both sides appear to view the conflicting data as cause for further (and more refined) investigation. In the meantime, the advice for air travelers remains the same: stay hydrated, and move around at least once an hour. (Based on personal experience, I would strongly suggest compression stockings and Gatorade instead of water as well!)

Here is a link to one article with coverage of these two research studies:

What Causes Blod Clots on Long Haul Flights?

Monday, May 15, 2006

Compression Stockings Reduce DVT Risk to 1/10 of Norm

More news about compression stockings -- the easiest way for any person at high risk of DVT to seriously cut their risk while traveling by air.

UK-based Cochrane Library reports that DVT risk can be reduced by wearing compression hose to as little as 1/10 of that experienced without the stockings, based on its research study of 2,800 people, according to the Toronto Sun.

Compression Stockings Cut Long-Haul Flight DVT Risk to 1/10th

Saturday, May 13, 2006

DVT and the Flu

I just read a second article out of the UK on this subject (no link because unfortunately the article from the Dialy Mail is apparently not available for free).

The author, a journalist in London (and mother of a 7-year-old), developed a groin DVT after a bout with the flu. She spent 36-hours in bed after "being hit with a steam train" by the flu -- so sick she felt she couldn't lift her head, much less get out of bed to get the fluids she knew she should be drinking.

A day later, she felt what she thought was a "groin pull" triggered by jogging earlier in the week.

Long story short: when she went to the doctor a few days later, a DVT (happily still very small) was detected.

The point of her article: any time you have extended immobility, there is a risk of DVT. Often there are no symptoms until the clot is very advanced. Yet another reason to drink plenty of fluids when recovering from flu, and to try to get out of bed and move at least a bit each hour.

Related links:

Infections Raise Risk of Deep Vein Thrombosis

Help MedicAlert! Annual Auction Through May

The MedicAlert auction has begun! If you didn't have a chance to donate any items, then consider buying something to support this vital organization.

Countless DVT patients on Coumadin (warfarin) are protected by MedicAlert identification and their patient database. Their good works are not-for-profit, and supported by the MedicAlert foundation. The auction features some amazing sports memorabilia (fabulous stuff like Michael Jordan autographed official Bulls Jersey, Tiger Woods autographed photo, autographed Wayne Gretzky and Mark Messier photo, and so much more!), autographed books (Harley Jane Kozak, Blaze Clement, etc), autographed Hollywood collectibles (Robin Williams autographed script, autographed photos from John Travolta, Robert Duvall, and more, plus many other Hollywood items), admissions to Six Flags, Sea World and more, and dozens of other art objects and other items!

It's a great place to shop for Mother's Day, Father's Day, or a special birthday, and find a gift that also benefits an organization so many of us rely on.

To check out the auction, click here.

Wednesday, May 10, 2006

Shock Value

Obviously, I have become deeply sensitized to the risk factors for and dangers of DVT. Yet, today I stumbled upon a DVT story today that was alarming even to me.

It's a potent reminder of the significant risk that women on HRT or oral contraceptives face for DVT -- a risk that is woefully under-reported by the US press.

Read this story -- from a woman whose DVT eventually required amputation of her leg. Note, though, that the advice accompanying it in the sidebar is a bit out of date. Experts today don't believe that aspirin makes a difference in preventing DVT (it's only functional for arterial clotting), and those really on the cutting edge of DVT research have found that drinking plain water actually can contribute to dehydration (sports drinks are best -- combining water with salty snacks is next best, although quite inferior).

This is a frightening story, but an important alarm bell for women on the pill or estrogen therapy!

"I Lost My Leg to DVT"


Computing and DVT

I've been reading more and more articles (mostly from the UK and Australia -- where most of the best DVT reporting is coming from in my opinion) about DVT risk among computer programmers, engineers, video editors, and others who spend long hours of time sitting in one place for their work.

What concerns me most about this is that so many people believe that they are not at risk because they work out seriously every day. The problem is, this one burst of intense activity doesn't keep the blood flowing when that workout comes before or after a four, five, six or more hour stretch of uninterrupted work at a desk. (Getting up every hour for a few minutes of walking, stretching and drinking water is likely to be much more effective at protecting you from a DVT -- whether or not you have that major workout.)

In fact, some of the forum posts on this subject are so arrogant as to be really scary.

I've already posted some material on the DVT risk that endurance athletes face. Combining intensive training with a desk-bound job with few breaks may actually be the highest risk mix.

Here's today's article from the Daily Mail. A few past articles include this one from Australia's The Age and this one from Ergoweb.

Monday, April 10, 2006

The skies seem friendly again

I just got back from my first air trip since my diagnosis in February. (I guess it goes without saying that I survived the trip :) .) I traveled from Sacramento to Texas -- two flights and a total of about seven hours in the air.

It was scary to fly again ... but, after an uneventful outbound trip, I became excited by the prospect of traveling again! I learned a few things, too:
  • Sports drinks: yes, the advice to take sports drinks instead of water does seem to make a difference.

    For years I've been a frequent traveler (100k+ miles per year in the late 90s), and always a big water drinker while in the air. Generally speaking, the amount of water correlated directly with trips to the bathroom. And although psychologically I felt reassured that I was maintaining the best possible hydration, physically I still felt dehydrated and tired getting off of planes, regardless of how much water I drank.

    This time, I decided to take into account the results of some recent research which said that water is actually dehydrating when inside an airplane, and sports drinks work better. I drank only Gatorade and Powerade on my flights to and from Texas.

    What a difference! I wasn´t running to the bathroom every ten minutes like I did in the past when I was guzzling water on planes. I noticed I had much more energy, and my feet weren´t swollen like they´d always been in the past (although this last effect may have been due to the compression stockings as well).

    The only downer is that the sports drinks have a lot of calories, and, in my opinion, taste kind of gross. Small prices to pay, though.

  • Compression stockings: typically, I wear only one stocking (on my DVT leg). But, for flying, I decided to wear them on both legs. I had read a story recently about a father and daughter who traveled together by air. The father was a previous DVT patient and wore compression stockings on both legs. His twentysomething daughter didn´t wear stockings, but was careful to drink lots of water and walk frequently about the cabin. Sadly and unexpectedly, the daughter suffered a fatal DVT and PE, while her father (who took no other precaution besides wearing the compression stockings) was fine.

    The anecdotal medical conclusion from this story was that compression stockings have a very powerful, positive impact on circulation. Compressing the lower leg near the ankle significantly increases the speed of blood flowing from the bottom of the leg back up the body, and this greatly reduces (possibly eliminates) the risk of a clot.

    Additionally, as mentioned above, the improved circulation in the legs really helps eliminate the draggy, tired feeling air travel can cause. And no more swollen feet!

    I´ve been recommending (like a broken record) that all my high-risk friends consider wearing this hose on planes. And high risk women are more plentiful than you might think, since birth control pills, HRT and varicose veins all contribute significantly to DVT risk.

  • Walking. I recently invested in a pedometer, and took the opportunity to cruise the airport during my layovers. Great way to get the extra steps in ... plus reassure yourself that you´re getting the blood flowing again between flights. I was able to easily get 8,000 steps in during pre-boarding and layover time on my Texas trip.

It feels great to know that I can travel again. When I was first diagnosed, I thought I would be grounded for life. With a few extra precautions, it seems there is no need for my wings to be clipped. (Well, I´m not sure I´m ready to head for any locations without really modern hospitals until I´m off anticoagulants. But that leaves the door open for many of the places I´m eager to visit.)

Compression Stocking Review Round-Up (to date)

Comfort
Appearance
Effectiveness
Overall Grade
Comments

Jobst Knee High 20-30 (open, natural color)

A-
B-
A
A-
Looks therapeutic. Open toe big comfort advantage.
Jobst Knee High 20-30 (closed, black)
B
B+
A
B+
Looks like regular black opaque knee high.
Jobst Thigh High 20-30 (closed, black)
B-
B+
A-
B
Weak silicon band - lots of pulling up. Looks like regular tight.
Mediven Thigh High 18-20 (closed, natural)
A-
B
A-
B+
Very effective silicon band; somewhat "therapeutic" appearance

Compression Stocking Reviews #3 and #4

Two more compression stocking reviews:

Jobst 20-30 mm Hg Knee High (Closed Toe)

This pair is identical to the other pair of knee-highs I reviewed, except that it has the (normal) closed toe design.

It's fine ... versatile (bought it in black for variety). Does a good job of keeping the blood flowing! But, it's hard not to compare against the open toe version, which really shines both for comfort inside shoes (especially when you're doing a lot of walking) and ease of donning.

Jobst 20-30 mm Hg Thigh High

This is my second thigh high review as well. On the plus side: the look of these (in black) was close to a non-compression tight. I doubt anyone could tell the difference if they didn't already know it was a compression garment. Also, the material is softer and more comfortable than the Medivens I reviewed previously.

There is one big drawback, though -- the silicon band at the top of the Jobst is not nearly as effective as the one used by Mediven. These stockings need to be pulled up frequently -- whether just after showering, with/without lotion, etc. Powder might help (haven't tried that yet). Is this enough of an irritation not to wear them? Probably not -- they'd be great with a skirt (in winter). But, for every day use, I'd go with a knee-high or the Mediven thigh highs.

In sum ... all options did a good job in keeping swelling in check. There were some differences in comfort and appearance that might be important depending on individual needs. And, since it's winter now, I feel it's important to point out that all bets are off when summer comes! I'm still wondering how I'll figure out the whole compression stocking thing when it's 110 in the shade ... more news on that when it comes in.

One important note: you may be wondering whether knee high or thigh high stockings are indicated based on whether your DVT is in the thigh, calf or both. In may case, the DVT is mostly in my thigh, extending a bit to the calf -- but, my doctor pointed out that knee high is sufficient even in my case, because the calf is where the swelling happens. The swelling prevention results have borne this out -- the knee highs were just as effective. Of course, for overall support, the thigh highs do have an advantage (they were great at a trade show -- least tired my legs have ever been!). Then again, appearance and comfort make a difference, too (hard to imagine the thigh highs being tolerable in the Sacramento summer).

Bottom line: if your swelling tends to be in the lower leg only, knee highs may do the trick, but if you have questions, you should of course ask your doctor!

Catching up

Long time, no post. Happily, a mostly-stable INR, diligent use of some excellent compression stockings, and a gradually increasing regimen of daily walking have helped me get most of my strength and energy back. For the past couple of weeks I've been busy catching up on all the work I fell behind on during nearly a month off, and even found the time (and guts) to take a business trip to Texas! More on that later.

I am pleased to report that finally -- nine weeks post-diagnosis -- I'm starting to feel mostly normal again. I still have some pain when sitting more than 30 minutes or so (so it's unfortunately taking me longer to catch up on work than I would like), and, obviously, I've had to adjust my lifestyle to be sure I get the stockings on to an unswollen morning leg, take my meds on time, eat the right amount of vitamin k, etc. But, emotionally, I think that I'm only just starting to realize how low I'd become, as I can see the marked contrast versus how I'm feeling now.

What does it mean? It's interesting to contemplate the mind-body connection. Even within a couple of weeks of diagnosis, I was medically "okay" to resume all my normal activities. But, the energy just wasn't there. This was no doubt due in part to not exercising at all for a good four weeks. But, even after getting up to a couple miles of walking every day a few weeks ago, I still didn't feel really "right." My affected leg felt like it was dragging, and, most notably, I felt so sleepy all the time -- needing a good hour more every night than I've ever needed before.

Can't help but wonder if my body was just saying, look, you don't get it, but I need to heal! I've never been a great one for "listening to my body." It doesn't help when doctors give you a prescription and a pat on the head and tell you you are fine.

If you're reading this and you've recently had a DVT, are depressed or anxious and wondering whether you're overreacting, know that you're not the only one who has experienced it. My sense is that it really takes a lot longer for your body to recover than it might appear, and, while it's recuperating, your mind may need a little pampering, too.